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My Family (What's Left Of It) Is Imploding

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My Family (What's Left Of It) Is Imploding Empty My Family (What's Left Of It) Is Imploding

Post by Constantine Wed Jan 10, 2024 4:50 pm

A wave of serious medical illnesses are hitting my family members at the same time.  

1.  My aunt is battling lung cancer (not from smoking) that spread to her liver.  She's been going through treatment but instead of getting better, everything is getting worse and she is now back in the hospital.  It is not looking good right now and we are all sad and concerned about the latest turn of events.

2.  Her daughter (my cousin) has dementia and also has been getting worse.  She's up here now from Virginia and we (my other cousin and I) are having a lot of trouble scheduling more testing for her as well as keeping her from disabling all her accounts because resets passwords and forgets everything, doesn't pay her bills, etc..  

3.  My brother has been diagnosed with a degenerative brain disease called Cerebellar Ataxia.  He's having mobility, balance, and dizziness problems, and it affects his behavior.

4.  My other cousin (the only healthy one among us) is very stressed and is considering quitting his job because he can't handle that plus the on-going needs of his mother and sister.


Our holidays were pretty crappy.

I've given a lot of help, time, and advice (some of which is not being followed).  
Meanwhile, I have my own medical and other situations to deal with.

Everyone except my brother and I are unsaved.  That of course makes things more challenging because they do not draw on God's strength, grace, and mercy.

Would appreciate any prayers, especially for my aunt because she's in the most critical state right now.
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Post by MagnusPrime Wed Jan 10, 2024 5:29 pm

You and your family are in my prayers for sure, my friend.
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Post by StevenCressler Wed Jan 10, 2024 5:32 pm

Will do!
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Post by Xid Wed Jan 10, 2024 6:27 pm

Prayers for you and your family!
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Post by Kerrick Wed Jan 10, 2024 6:30 pm

That's quite the hand of cards your family has been dealt.  Praying!!!  Please keep us posted.

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Post by BaleMaster Wed Jan 10, 2024 11:41 pm

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Post by Kerrick Mon Jan 15, 2024 4:56 pm

How are things going Constantine?

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Post by Constantine Mon Jan 15, 2024 5:43 pm

Kerrick wrote:How are things going Constantine?
Thanks for asking, Kerrick.  

So my aunt and my cousins have decided to put my aunt into hospice / palliative care (at home).
The hospice team brought a bed, oxygen tank, etc. to her home and she is there now.

Hospice more or less means she doesn't want to pursue aggressive treatment any longer. 
However she is scheduled for one more chemo round this week and last I heard, she will go.
And they will be trying a few other things so there is still some (small) hope of things getting better.
But right now, it is not looking so good....

My cousin with dementia is still up here staying with her mom, we don't quite know what to do with her next.
She still denies there is anything wrong with her which makes helping her very difficult.   
We're waiting for some more tests to be run so that there is concrete medical info.

My brother is stable for now.  He's very obnoxious and abusive though, and I can't help but wonder if that is a symptom of his illness.  He's been that way for awhile but it's gotten worse in the last year.

I'm trying to schedule PT right now for myself.  Otherwise hanging in there, but have been having trouble getting motivated to do things I need to do.  Dealing with lots of different emotions, lack of energy, and getting easily distracted.  
It's been a little better today though.
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Post by KaramKaram Wed Jan 17, 2024 10:05 am

Contantine,

I am truly sorry to hear about the challenging times your family is going through. It's heartbreaking to learn about the health struggles your loved ones are facing. Your strength and compassion in supporting them, despite your own challenges, are commendable.
Let's join our hearts in prayer:
Dear Heavenly Father,
We come before You with heavy hearts, lifting up Constantine and his entire family in this time of immense difficulty. Lord, we trust in Your infinite wisdom and boundless mercy.
We pray for his aunt as she battles lung cancer and its complications. Surround her with Your healing presence, provide comfort, and grant strength to both her and the entire family. May Your grace be a source of peace amid the storm.
For his Cousin', who is grappling with dementia, we seek Your guidance and understanding. Grant Constantine and the family the wisdom to navigate the challenges, and may Your light shine upon the path to the best possible care.
Also as his btoher faces the trials of Cerebellar Ataxia, we ask for Your healing touch. Bring stability to his mobility, balance, and behavior, and reassure him with Your comforting presence.
Lord, we also lift up the other cousin up, who bears the weight of stress and contemplates major life changes. Provide strength and clarity in the midst of these challenges, and lead them all to a place of peace.
In the midst of these hardships, we thank You for Constantine and his steadfast faith. Lord Jesus, be a beacon of hope, guiding Constantine all through his own medical and personal situations.
May Your love envelop this entire family, bringing solace, healing, and a deep sense of Your presence. We trust in Your perfect will, knowing that Your plans are far beyond our understanding.
Constantine if you ever need someone to talk to or share the burden, I am here. Lean on the support of those around you, and remember that you are not alone in this journey.
In Jesus' name, we pray.
Amen.
With love and solidarity,

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Post by Constantine Sat Jan 27, 2024 3:25 pm

Update:  I'm back at my aunt's house this week and weekend, helping out.

My aunt is not doing so well, but hanging in there.
Thankfully not in any pain.  I do wish she was amenable to trying other treatments.
But at 88 years old, I think her mind is made up.

Regarding my one cousin, we talked to her neurologist yesterday.  
Based on her recent PET scan, we were told she has Alzheimer's (technically a form of dementia).   
Dealing with her has been challenging to say the least.
Lots of questions remain on how to care for her going forward, so lots of wisdom is needed.

Have not talked to my brother lately.   

My PT will not be starting until the end of February, so that gives me more time to help out  for now.

Thank you to everyone for your prayers and concern!   
Hope everyone here is having a good weekend so far.
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Post by Constantine Mon May 13, 2024 2:44 pm

Update:  My aunt passed away Thursday night.  I got to see her one last time on the Saturday before that, but she was bedridden, weak, and not able to talk much.  

Going through lots of mixed emotions right now, dealing with some complicated situations. I've been helping my cousin George with notifying family and friends.  A wake and funeral are going to be this Friday and Saturday.

Lots of questions remain about what will happen to my other cousin, the one with Alzheimer's.  She can't remain in the house by herself.   We (my cousin George, his girlfriend and I) plan to discuss all this soon, but have to get through the next 1-2 weeks first.

Thanks for listening and being there!  Hope everyone here is doing okay this week.
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Post by StevenCressler Mon May 13, 2024 2:47 pm

Constantine wrote:Update:  My aunt passed away Thursday night.  I got to see her one last time on the Saturday before that, but she was bedridden, weak, and not able to talk much.  

Going through lots of mixed emotions right now, dealing with some complicated situations. I've been helping my cousin George with notifying family and friends.  A wake and funeral are going to be this Friday and Saturday.

Lots of questions remain about what will happen to my other cousin, the one with Alzheimer's.  She can't remain in the house by herself.   We (my cousin George, his girlfriend and I) plan to discuss all this soon, but have to get through the next 1-2 weeks first.

Thanks for listening and being there!  Hope everyone here is doing okay this week.
Sorry to hear that, I've been recently thinking a lot deeper about familial deaths and how much we take our family for granted after I started talking to a girl who lost her mom. It really puts things into perspective. Hope you're doing okay.
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Post by Ammocas Mon May 13, 2024 8:40 pm

I’m sorry about your Aunt; Constantine. You and your family are in my prayers. Stay strong brother.
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Post by Constantine Thu May 23, 2024 3:16 pm

Well the day after my aunt's funeral I unfortunately had to go to the ER.
Found out I need another surgery but it won't even be scheduled until after the surgeon does a cystoscopy to find out where the problem is.  The cysto is not scheduled until June 4.   In the meantime, I'm having to wear a catheter leg bag and night bag (I'll spare you the gory details).

It has been difficult and miserable but I'm leaning on God and dealing with it day by day.
Would appreciate any prayers.   

Am supposed to house-and-dog sit for a friend in Staten Island on June 19 but now that is in jeopardy.  
Although I'd still like to try to make it work somehow.
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Post by Kerrick Thu May 23, 2024 3:30 pm

Oh shoot that sounds terribly rough.  I am so sorry.  Praying for you right now.

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Post by Constantine Thu May 23, 2024 3:32 pm

Kerrick wrote:Praying for you right now.
Thank you so much!    I really appreciate it.
Have a great day.
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Post by Ammocas Thu May 23, 2024 9:48 pm

Constantine wrote:Well the day after my aunt's funeral I unfortunately had to go to the ER.
Found out I need another surgery but it won't even be scheduled until after the surgeon does a cystoscopy to find out where the problem is.  The cysto is not scheduled until June 4.   In the meantime, I'm having to wear a catheter leg bag and night bag (I'll spare you the gory details).

It has been difficult and miserable but I'm leaning on God and dealing with it day by day.
Would appreciate any prayers.   

Am supposed to house-and-dog sit for a friend in Staten Island on June 19 but now that is in jeopardy.  
Although I'd still like to try to make it work somehow.
I’m praying for you…in Jesus’ name for healing and peace Constantine. If you are in S.I. June 19, maybe we can meet up for coffee or lunch if you are up to it.
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Post by Constantine Thu May 23, 2024 10:36 pm

Ammocas wrote:

I’m praying for you…in Jesus’ name for healing and peace Constantine. If you are in S.I. June 19, maybe we can meet up for coffee or lunch if you are up to it.
Absolutely would be up for it...the original idea is for me to be there for a few days.  I was talking to my friend on the phone today and we were trying to figure out if/how this will work given the new circumstances.  Too early to tell, but I'm hoping it can still work somehow, even if I have to go there with all my medical paraphernalia and modify my activities.
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Post by KaramKaram Fri May 24, 2024 10:17 am

I am sorry to hear about your loss my friend. I am praying for you all
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Post by Constantine Tue Jun 04, 2024 8:32 pm

Update:  Well I saw the urologic surgeon today.  He did the scope (always unpleasant, but not too bad this time) but the great news is that I do not need surgery at this time!  What a relief, and it's a miracle - thanks to everyone for your prayers!  I am no longer wearing the leg bag nor do I have to deal with the discomfort and stress of the various bags (at least for now).   

Still having a problem with nausea, which was bad today.  I have a theory on what is causing it though so I am in the process of testing that.

God willing, I will be able to dog-sit for my friend in Staten Island later in the month.

That's it for now....doing what I can today but still feeling very tired after all this (also, I've been up since 3:30am).  Hoping for a better day tomorrow.
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Post by BaleMaster Thu Jun 13, 2024 10:37 pm

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